rare diseases - updates

Rappler's latest stories on rare diseases

ARTICLE FINDER

Gene therapies are proving their worth, but with million dollar price tags, it's not clear who should pay for them

Mar 31, 2018 - 10:00 AM

Is witnessing a starry night worth an eye-watering $425,000 per eye?

GENE THERAPY. Gene therapies became a clinical reality in 2017. Festa/Shutterstock

Expert warns vs wild claims linked to Dengvaxia

Feb 05, 2018 - 4:57 PM

The Public Attorney's Office files a civil case demanding damages amounting to P4 million against former health officials, along with officials of Sanofi Pasteur and distributor Zuellig Pharma

DENGVAXIA. PAO's forensics head Erwin Erfe says a 10-year-old vaccinated child was found with signs of the rare vaccine-related viscerotropic disease during a press conference on February 5, 2018. Photo by Lian Buan/Rappler

House OKs comprehensive policy for patients with rare diseases

Sep 03, 2015 - 6:16 PM

WHO says there are 7 000 known rare diseases in the world with up to 70 affecting children In PH a disease is considered rare when it affects one patient in every 20 000 population

Me, 'orphan' diseases, and Capiz

Apr 03, 2015 - 7:00 AM

In Capiz people with XDP are often mistakenly thought of as aswangs Learn about the truth behind orphan diseases like XDP

Rare Pairs: A charity dinner for orphan disorders

Nov 19, 2014 - 3:04 PM

With the lack of support from the government it is our responsibility as private citizens to contribute and support this ignored sector of our society

'Ice Bucket Challenge' passes $100-M mark

Aug 30, 2014 - 8:02 AM

Between July 29 and August 29 100 9 million had been raised in donations compared with 2 8 million during the same period last year

Angara bill to help patients with ALS, rare diseases

Aug 28, 2014 - 4:56 PM

Aside from filing the bill Senator Sonny Angara also accepts the ALS ice bucket challenge

A fighting chance for patients with rare diseases

May 08, 2014 - 9:42 PM

In the Philippines those who suffer from rare diseases depend on government for their expensive treatment Lawmakers are trying to address the patients needs further

DREAM: DOCTOR. Patients like Ziv Morejon (R) who are diagnosed with rare diseases can also enjoy a decent quality of life if the right support system is in place. Photo by Jee Geronimo/Rappler